MDS presents a Special Needs Trust workshop on Thursday, May 16th from 6:00 to 8:00 p.m.) at MDS, 121 Railroad Street in Keene. Attorney Judith Jones will provide basic information and strategies for families regarding special needs and estate planning.

Family members, educators, guardians, advocates, caregivers and counselors are encouraged to attend this evening workshop to get information and strategies on special needs and estate planning, including powers of attorney for finances and health care, wills and special needs trust. The workshop will be presented by Judith Jones, attorney at Butenhof & Bomster, PC who practices in the areas of Elder Law, Estate Planning, Medicaid Planning, Special Needs Trusts Planning, Guardianships and Probate.

For information and to register, contact Sandra Metivier at 603-352-1304 ext. 290 or This email address is being protected from spambots. You need JavaScript enabled to view it..

May 13 Update:

 

On Thursday afternoon and evening, May 9, the Senate Finance committee conducted a six-hour public hearing on HB 1 and HB 2 (State budget). Developmental Services was once again the most advocated program, followed by Domestic Violence Prevention and Substance Abuse Treatment.
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April 30, 2013

The Senate Finance Committee will conduct a public hearing on HB 1 and HB 2 (bills for the State budget) on Thursday, May 9th from 3:00-5:00 p.m. and 6:00-8:00 p.m. in the Representatives' Hall of the State House in Concord. This is a chance for MDS families to deliver the message that the restoration of recent budget cuts is a top priority for New Hampshire families. The Senate has had the House’s version of budget bill before them for several weeks, and its Finance Committee has been meeting with House members and various state agency heads to understand what the House budget means for those groups. Since this hearing is about the entire budget, there will be many groups represented.

It is important that Senate Finance hear testimony from families. Testimony should be limited to one page. Please plan to contact your Senator about the budget if you are not able to make the trip that day. Please send us a copy of your testimony so that we can prepare packets for all the members of the committee.

Contacting your Senator:

Senate districts have changed recently – we have five different Senators representing individual towns of the Monadnock Region.

District 8
Bob O’Dell (R-Lempster)
State House, Room 302
107 North Main Street, Concord, NH 03301
(603) 271-2609
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Towns: Acworth, Antrim, Bennington, Francestown, Hillsborough, Langdon, Lempster, Marlow, Stoddard,Washington, and Weare.

District 9
Andy Sanborn (R, Bedford)

State House, Room 302
107 North Main Street
Concord, NH 03301
(603) 271-2609
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Towns: Dublin, Fitzwilliam, Greenfield, Hancock, Jaffrey, Lyndeborough, Mont Vernon, New Boston, Peterborough, Richmond, Sharon, Temple and Troy

District 10
Molly Kelly (D, Keene)

State House, Room 120
107 North Main Street
Concord, NH 03301
(603)271-3207
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Towns: Alstead, Chesterfield, Gilsum, Harrisville, Hinsdale, Keene, Marlborough, Nelson, Roxbury, Sullivan, Surry, Swanzey, Walpole, Westmoreland, and Winchester.

District 11
Peter Bragdon (R, Milford)

State House, Room 302
107 North Main Street
Concord, NH 03301
(603) 271-2111
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Towns: Amherst, Milford and Wilton

District 12
Peggy Gilmour (D, Hollis)

State House, Room 105-A
107 North Main Street
Concord, NH 03301
(603) 271-4151
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Towns: Brookline, Greenville, Hollis, Mason, New Ipswich, Rindge

Updates on other bills of interest:

SB 152 (Casino Gambling)
Right now, the House is focusing on SB 152 (Casino Gambling). The “super committee” of joint Finance and Ways & Means has broken up into sub-committees (Revenue, Regulation and Community Impact). It isn’t yet clear what these committees will recommend to the full House. What does seem clear is that the Senate will NOT include gaming revenue in its budget recommendation unless the House passes SB 152.

SB 193 (Oral Health Care Expansion)
The Oral Health Care Expansion bill (SB 193) was recently held for a year of study in the State Senate. This bill specifically mentions that part of its purpose is to expand dental care access to people with developmental disabilities. Specifically, this bill authorizes licensure of dental therapists who may perform dental services under the supervision of a currently licensed dentist. The bill’s statement of purpose reads: "The general court recognizes that access to oral health care services for New Hampshire’s children, elderly, minority populations, low income adults, and people with developmental disabilities and special medical needs remains sporadic and unreliable, particularly in sparsely populated areas of our state".

Also under review:

HB 528, a bill that allows the court to initiate or continue child support beyond the age of 18 for children with disabilities, provided that the order does not continue after the child reaches age 21.

SB 87, a bill that clarifies the patients’ bill of rights as it applies to home health care providers. The bill also establishes parameters for discharge or transfer from home health care.

centralparkjoggercoverapr2013Crotched Mountain Foundation’s Hilliard Speaker Series is pleased to bring writer and inspirational speaker Trisha Meili to Crotched Mountain on May 1, 2013 at 3:00 p.m. in Carter Hall. Trisha will share the challenging and inspiring moments of her journey of healing after surviving a savage attack when jogging in 1989.Trisha’s story is not of a tragedy, but rather one of healing. The horror of her experience brought an outpouring of support and love from her family, friends, healthcare workers, co-workers and strangers.

Today Trisha is one of the most sought after inspirational speakers on the lecture circuit. Audiences enjoy Trisha’s energy, wit and poignant stories about the power of the human spirit. Through her work, book and lectures, she reaches out to people struggling through recovery from any number of problems, offering hope and possibility.

For years, Trisha Meili was known to the world as the Central Park Jogger. Her amazing story of survival and recovery was detailed in her best-selling memoir, I Am The Central Park Jogger: A Story of Hope and Possibility.

If you are interested in attending the Hilliard Speaker Series, contact Paula Raymond at 603-547-3311, ext. 1486.

Governor Maggie Hassan has issued an executive order to create a Commission on Medicaid Care Management. This panel will review and advise the Governor on the implementation of the Medicaid Managed Care program, includes two Monadnock area professionals: Donald Shumway of Crotched Mountain Rehabilitation and Yvonne Goldsberry of CMC-DH-Keene.

Click here for details.

Click here to read Governor Hassan's Proclamation.

On Wednesday, April 18 the NH Executive Council once again voted to table a decision on the Medicaid Managed Care contract until its next meeting on Wednesday, May 9. This makes it highly likely that implementaiton of Step 1 (acute care) won't happen until at least January 1, 2013. Details and dtiming on Step 2 (long term care and DD) are still uncertain. Go to the MDS Advocacy page to read most recent articles and updates.

On Wednesday, April 25 the Senate Finance Committee voted 7-0 to spend $1.5 million dollars to help families on the developmental disabilities waiting list.This state spending would be federally matched under the “DD Waiver” for a total of $3 million. The bill (with amendments) now goes to the full Senate on May 2nd. If passed HB 1652 will go back to the House, where members will vote on the Senate's changes.

Updates on this and other issues available in our Advocacy section.

Contributed by Linda Quintanilha
Thanks in large part to the efforts of local ABLE NH members and Peterborough state representatives, the bipartisan effort to get $1.5 million back in the DD system for the Wait List passed as a floor amendment in the N.H. House on March 29th. Click here to read an article in the March 30th Keene Sentinel about this.

The Senate Finance Committee will conduct its public hearing on HB1 and HB2 (both concerning the State budget) on Thursday, April 21 from 2:00 to 4:00 p.m. and from 6:00 to 8:00 p.m. in the Representatives Hall in the State House in Concord. Families and those with concerns about the budget cuts are encouraged to attend this meeting, and write to their senator expressing their concerns. For more information and updates, visit the Advocacy page.

James Haddock, an important disabilities and human rights activist, passed away on Thursday, March 31 as the result of a fall at his home in Dublin, NH. The son of Doris “Granny D” Haddock, Haddock is particularly noted for his efforts on behalf of people with disabilities in the state of New Hampshire. A memorial service was held on Sunday, April 10th at 2:00 p.m. at the Dublin Community Church.

Haddock’s work teaching children classified as “retarded” back in the 1960s led to his lifelong commitment to the rights of people with developmental disabilities. He was a leading force in the 1979 class-action lawsuit filed against the State of NH which led to the closing of the Laconia State School. His son believes his father felt this was his life’s crowning achievement.

Haddock was a founder of New Hope-New Horizons, back when it was housed in the basement of a church in Keene. Among other causes he championed were campaign finance reform, and the blocking of an east-west highway across southern New Hampshire. He and his wife founded Cobb Meadow School. The effects of his advocacy will be felt for many years to come.

The Bureau of Developmental Services (BDS) presented its 2010 Redesignation Review for Monadnock Developmental Services to the MDS Board of Directors at its March meeting. This written report is the result of a comprehensive evaluation is completed by the State's Bureau of Developmental Services (BDS) through a process called "redesignation". This review of area agencies is required by state regulation and is intended to determine how well the area agencies are meeting their responsibilities.
Click here for a pdf version of the Redesignation Review.

rallylaconiasignMore than 4,000 people gathered at the State House in Concord yesterday to protest the NH House Budget. Nearly 200 people from Monadnock region joined the rally, asking representatives to reinstate much-needed funds to provide critical services for people with disabilities. Family members, individuals, agency staff, professionals and community members were all on hand to make their voices heard.

The State House lawn was filled with a sea of people of all ages and abilities, many with colorful signs bearing poignant or pointed messages to lawmakers, all to rally against proposed budget cuts that would deeply affect many. The solidarity among residents was clear as ordinary people, representatives of human services, healthcare, education, fire and police unions gathered peacefully and listened to the speakers. One sign simply said, "We all need a little help sometimes, " and another, "Hell No - We Won't Go -  To Siberia or Back To Laconia."  NH Cares website has a slideshow of photos from the event.

As expected, the Budget (with cuts) was passed yesterday by the House in a 243-124 vote. The Budget now goes to the Senate for consideration.

Monadnock Developmental Services will host an important four-part workshop series, Creating a Life Care Plan, to help individuals and families better prepare for financial stability for those with disabilities. The workshops will be from 6:30-9:00 p.m. on four Tuesdays – May 18th, May 25th, June 1st and June 8th – at the MDS office at 45 Main Street in Peterborough.

The Creating a Life Care Plan workshops will focus on financial tools and strategies for individuals with disabilities, and is designed for parents, siblings, family members, guardians, counselors, advocates and educators. This four-part series will give families real tools, a forum for questions, and hands-on practice to create a plan for the future.

Presenters for the free workshops are MassMutual Financial Group Special Care Planner Neil Rogers, Attorney David Craig, Sheila Mahon of MCST and Sandra Metivier of MDS.  There is no charge, but registration is required. Attendance at all four sessions is highly recommended.

"Anyone with a family member or friend with special needs knows how important it is to create solid financial solutions for long-term stability," says Mary-Anne Wisell, MDS Director of Operations. "Presenters will share crucial information on insurance, wills, benefits, guardianship, trusts, work incentives and more."

To register or for more information, please call 603-352-1304 or email This email address is being protected from spambots. You need JavaScript enabled to view it..

Monadnock Developmental Services (MDS) will host a Community Open House on Friday, May 7th from 5:00 p.m. to 8:00 p.m. at its 45 Main Street office in Peterborough. The MDS Open House, part of Peterborough's First Friday celebrations, will be an opportunity to find out more about community building and join conversations on exploring ways to help people of all abilities better contribute to their communities. There will also be discussions and information on programs and services that MDS and its partners provide for families and individuals with disabilities. Light refreshments and entertainment will be provided.

For more information about the MDS Community Open House, please call 603-924-4203 in Peterborough. You may also visit the MDS website at www.mds-nh.org.

marysweb

On Saturday, April 3rd, the Keene Sentinel ran a profile of Mary Starkweather, a Keene woman who suffered a serious brain injury at the age of 18. The article focuses on how she has followed up on a wish she expressed in a story in the Monadnock Views Fall 2008 newsletter.  At that time she said she wanted to tell her story to teens just starting to drive. Mary is doing that now, and much more.